My Mom died early Thursday morning. Her heart was weakened by the neglect of her congestive heart failure by her ‘doctor’ and it was just too tired to survive the covid she caught at the nursing home. It’s been a busy 36 hours or so, making decisions and signing papers – so. many. papers! Belinda and Stefan came up Thursday and have been a great distraction for Ella. Mom wanted to be cremated. So that’s what we are doing. We’ll wait until spring (hopefully we will be allowed a reasonable number of guests) and bury her in Bowmanville beside my Grandpa.
I want to start with my thanks for everyone who is still here. I also need to appologize to my friends on here with whom I usually send emails too. Especially Elizabeth, I just realized I missed your Christmas and everything going on in your life and I’m really sorry for that.
My world has fallen apart and thing don’t look like they are ever going to get better. The start of the story is here, in case you forgot. Mom got sent back to the hospital. At first the ER doctor thought it was pneumonia. Turns out it’s was just the congestion from the heart failure. The good news was the hospital admitted her again. In fact, most of the nurses up on the floor couldn’t believe she was even released in the first place (we never did find out who authorized the discharge). So back in hospital for an unknown time. More good news, her shoulder was NEVER broken. Apparently this is a problem with being at a teaching hospital. The orthopedic surgeon let his students look at Mom’s xray. THEY were sure it was broken, so he let them run with that. Since Mom had absolutely NO PAIN he finally looked at the xray and realized it was fine. To be fair to the doctor, he came in person to appologize to Mom for the mistake. That certainly made Mom’s mobility improve.
Lots more diuretics and she was down 60ish pounds. Mom finally improved enough that there was talk about sending her down to the rehab floor. We really thought things were going well and life would go on, more or less, as they did before.
Forgot to mention, Mom had been having really weird dreams and some rather odd waking thoughts. The hospital had her on some sleeping pills, something she’s never had before. I suggested they cut the dose and they did and that seemed to fix the problem, or so we thought.
OK, now Mom’s in rehab. She’s loving the physio guys and working really hard to get back home. Weight is continuing to drop off. She ended up loosing close to 90 lbs of fluid!!!
August 17, Mom sent home!! We were promised physio visits and lots of at home support. I made a bunch of ‘tv’ dinners to put in the freezer so she wouldn’t have to do any cooking. I also had the house cleaned to make it liveable (apparently Mom had turned into a bit of a hoarder and had Ella sworn to secrecy). Mom was not doing well. She kept calling and I had to go over every other day. No help ever arrived. I would never have let her come home if I had known she wouldn’t get the support promised. She also, still wasn’t herself from time to time. I’d get some rather odd phonecalls.
September 10, I took Mom in for her cataract surgery. We then drove her down to Kaladahar to meet up with my BIL. Belinda and Stefan were keeping Mom for a week post-surgery. Cataract surgery requires lots of eye drops for a week and Mom couldn’t do those herself. It was a nice to have a break and not have to worry about Mom. Given everything that was going on, it was obvious Mom couldn’t stay at home. We found a retirement apartment/room for her at Country Haven in Beachburg. It was perfect, a private room with a shared bathroom within her price range. It took a lot of convinvincing. Mom really thought she could manage by herself.
September 20 we moved Mom into Country Haven. She was able to take a lot of her things from home. She made her room look very cozy. This should have been a really good step and it looked like it would be, at first. She was making friends with her neighbours, especially Robert. We went out a few times for groceries and just a drive. She really seemed to be accepting the new normal and she seemed to enjoy most of the people.
On the surface, things looked good. But I was still getting bizarre phone calls and when we were out she’d say things. It was like dementia had started overnight. There was none of this before the fall. Her personality was changing, and not for the better.
November 5, Mom had her other cataract surgery. Belinda and Stefan too her home again for a week of rest and eye drops. Mom never called the entire time she was down there. Not even to talk with Ella. Even now, she only calls when she wants me to go and fetch her something.
Mom’s walking continued to get worse. She shuffles and barely lifts her feet. She’s lost over 100 lbs now. She’s not acting like herself and barely even looks like herself. Every time I see her, it looks like she hasn’t brushed her hair for days. She’s all disheveled. Mom would never look like this.
Christmas day I get a phone call from one of the nurses. She really wants to send Mom to the hospital, but she’s refusing. The nurse said she was delirious. I seriously thought Mom was going to die that day. Boxing day they finally convinced Mom to go to the hospital. Turns out it was a UTI and apparently delirium is a very common symptom. They sent her back that evening (well, we had to go get her because the patient transfer don’t work weekend evenings).
On top of all this we were very busy trying to get Mom’s house sorted, cleaned out, and cleaned up. So. much. stuff!! Colin lost track of how many trips to the dump he took. I sold a few things and donated a few things, but so much went to the dump because I am just so emotionally exhausted dealing with everything. Belinda and Stefan tried to help, but there’s only so much they can do from Pickering. My cousin lives in Renfrew now, and he’s been such a help too.
I stopped buy to drop off some snacks for Mom. The home is under a covid outbreak lockdown so I couldn’t go in. I told her to come out to the door (which she had been doing) and she wasn’t there when I arrived. The guy at the door went to find her. He brought her out in a wheelchair!!! When did that happen? She looked like she’s weighs 90lbs! If she had been in a room with other old ladies, I’m not sure I would have been able to pick her out without looking closely. She really didin’t seem to be there.
This has been so hard on Ella. I don’t know what to do. I am so lost…
I was hoping to post an update by telling you Grandma is back home and everything’s fine…
But I can’t.
Mom’s health has been being neglected by her family ‘doctor’ (Dr. Terri Rheaume) since her fall last May. Since January Mom’s legs have been swelling. Every time Mom calls the clinic (the clinic refuses to see people in person even though every other type of doctor can manage) she is told it’s “just old age”. Well, fast forward a couple of weeks ago and Mom’s legs are now so swollen she can’t fit into her pants and needed to borrow on of my dresses so we could take her to her kidney doctor appointment. She could barely get out of the car!!
Two days later, we get a phone at 4:30 AM, it’s Ella saying Grandma fell in the bathroom and she has the ambulance on the way. Wow that was one fast drive to Beachburg. Thank God Ella was there. She was AMAZING!!!
Mom was very lucky and only fractured her right shoulder when she fell. Somehow she missed the tub and the toilet. Her legs just gave out on her. The hospital was horrified by the size of her legs. In the first 4 days they were able to drain (with medication) 20 lbs!!!!!!! of fluid. Even with that much weight gone, her legs are still huge.
She started doing better at the hospital. Physio and the wonderful nurses were doing a great job to get her back on her feet and walking again. It’s hard since she can’t use her right arm, so that means no walker for now. The hospital has also discovered that she has A-Fib and ‘slight’ heart failure. Stuff you would think your primary care doctor should know about.
So my sister and BIL arranged for Mom to go to the nursing home/retirement home in Beachburg. Everything was fine on Friday when she arrived. Just a little congestion, which is normal for this time of year. Then a cough started. It’s sounds like she’s coughing up a lung. I called the head nurse and spoke with her. We decided to send Mom back to the hospital (the Home’s doctor doesn’t come in until Wednesday). I’m here at home waiting for a call to say the ambulance/bus has arrived and she’s on her way.
What's the weather doing where you are? It can't seem to make up it's mind. We got so cold last week that Colin actually lit the furnace again! We've got the a/c back on and I'm so very glad because they are already talking 35C/95F with the humidity. My asthma is acting up today, so I'm so very grateful that I don't have to fight the humidity too.
I've got a bit of sewing done. So many of my dresses are getting worn out. Far too worn for going to town.
I had a lot of trouble with this dress. The original top didn't fit, still not sure how considering it was a custom pattern? So I pulled out my old faithful Folkwear dirndl pattern and changed it to fit the skirt, which was already cut out. I hand inserted the side zipper, which was a first for me.
See these happy, smiling faces?? That's because our whole family is now 'half' vaccinated. It has done a world of good for Ella's anxiety. Colin and Ella had rather sore arms for a few days (couldn't lift over their heads without pain/supporting the arm). I was fine. We also had really great people give us the needles. I've NEVER had a 'shot' that hurt as little as this one.
Now if only we could get some gentle rain in suitable amounts, everything would be great.
I’ve been planning this post for a while. Colin had just started planting the wheat. Now I’m happy to say he’s one field away from being done with the soy beans. Colin finished up planting the corn on Sunday.
My Christmas/birthday present finally arrived…
Colin got us central air!! I will finally be comfortable in the summer. I will be able to cook/bake in the summer. And most importantly, I’ll be able to breathe in the summer. My lungs have such a hard time in the heat and humidity.
Elizabeth posted over on her blog the other day about how much she and her Grandma love the month of May. I do too (and not just because it’s my birthday month). Her post got me thinking, where’s our May? Ever since Colin got the wheat in (the end of April) it’s been cold and rainy (except the day we got snow!). It does not look like the middle of May here:
Leaves are starting and my tulips are loving the cooler weather, but the trees are still basically sticks.
Speaking of my birthday, I turned 50 on the 4th. It was quiet since we are in lockdown again.